Life in hospital due to insurance gaps

I worked with Mike Stanzione for at least ten years at a previous job. I haven’t heard from him in a long while, but a post on Facebook led me to this article. He’s suffering from Pompe Disease which is sapping his strength and has weakened his lungs to the point where he needs a respirator. (Pompe’s was the subject of recent movie: Extraordinary Measures)

His insurance has required him to stay in a hospital for over a year. He is a good programmer, and if he was able get home care, he might even be able to work remotely. His insurance won’t pay for the home care, so he is stuck in the hospital.

This is a frightening prospect. He has lots to contribute, but is being held back by red tape. He can lead a good, if limited, life in spite of his illness, but he is forced to remain in a small hospital room away from his family.

NorthJersey.com: Man faces life in hospital due to insurance gaps.